Ali S. - Quilt Finished in 2006
Born: November 8, 1991
Illness: Acute Myelogenous Leukemia (AML)
A Thank you from Ali's Family!
Written August 6, 2006
Thank you so much for the beautiful quilt! The individual blocks are amazing! I love to read where all the blocks are from. It makes me feel really special to know that ladies from all over the world spent time making a quilt block for me!! The name Love Quilts is very fitting, because just by looking at it you can sense the love that was put into it! Again, thank you so much! I will treasure this quilt forever!!
Sincerely,
Ali Strawhun
Ali S.'s Story
written by dad Greg
This is a brief history of Ali’s illness.
January 28, 2005: Ali had her 13 year check with Dr. Solanki and complained of nausea & fatigue & he ordered blood work.
January 31, 2005: Ali woke up sick & tired, missed school and went to Quest for blood work.
February 1, 2005: Lab work came back bad so pulled Ali out of school to repeat blood work. Still bad.
February 2, 2005: First bone marrow biopsy at St. Johns’s with Dr. Bergamini (Dr. Bob). Results were puzzling so we started our two weeks of waiting and talking with Dr.Bob to see how all the slides etc came back. Ali’s bone marrow ended up in some very impressive facilities across the country.
February 15, 2005: Second bone marrow biopsy came back with diagnosis of acute myelogenous leukemia (AML)
February 16, 2005: HERE WE GO……………………………… chemotherapy x5 rounds all with different side effects, platelets 40-50 bags, chest x-ray x3, kidney function test, lost count of number of blood draws, ECHO x2, EKG x3, mouth sores, home IV antibiotics for 50+ days, eye exam, spinal tap x2, bone marrow biopsy x5, hearing test, bad bone marrow biopsy news x5, hair loss, >35 days spent in the hospital, >75 days of missed school, sinus x-ray x2, CAT scan, psychological test, dental exam, byte wings, severe fatigue, nausea, pulmonary test x2, >40 units of red blood cells given, about 80 trips to the hospital &/or clinic, port-a-cath surgery, multiple daily medication, answering questions constantly, port accessed often, backpack of fluids attached while home many days. SO, needless to say, Ali has been very busy for the last few months. We are on the countdown to her cure & we appreciate all that everyone has done for us. We love you!!!
On May 27th, 2005 Ali had a bone marrow transplant with our youngest daughter Emilie as the donor. Ali set a record for counts returning at 17 days. Since then Ali has remained under a careful watch of the docs at Childrens and completely isolated from everyone except her family.
Written by Ali's Dad Greg on July 10, 2005
