Breonna S. - Quilt Finished in 2009

Born: August 8, 1999

Illness: Neurofibromatosis, Renal artery stenosis right kidney, neurofibro nodule left kidney, enlarged heart with heart murmur, lesions throughout body and head, Obstruction sleep apena (c-pap), Asthma, High blood pressure, abdominal coaxtation

A Thank You From Breonna's Family!

8/6/09

We got the quilt. It was beautiful. She cried when she opened it and I did to. You all are such angels and did amazing work. She is showing everyone and telling everyone about it. Thank You Again. Your all so wonderful God Bless Bree and Shandra

Breonna S.'s Story

Written by Breonna's mom Shandra in October 2008

Breonna is 9yr old.  She struggles from NF 1.  She lives with me her mother and step father, 2 sisters 15, 11 yrs and 1 brother 16 yrs.  She has 2 cats.  Her sibilings are very over protective of her.

Breonna was born in August 1999 with a incurable disease called Neurofibromatosis or NF type 1.  We took her to get a kindergarden physcal and found high blood pressure.  The family Dr. sedated her and rushed her down to Riley Hospital in Indianapolis In.  There they hospitalized her and found out that she had a lot of problems.  We stayed there for 5 months in 2004 to find all of this and get the right medication for her.  She was diagonised with severe high blood pressure, renal artery stenosis (right kidney), neurofibo tumor (left kidney), enlarged heart with heart murmur, severe migraine headaches, Neurofibroma Nodules (leasions) in head and through out body, abdominal coaxtation, asthma, obstructive sleep apena (c-pap), besides NF.  Due to all these problems she is on 17 different meds and sleeps 18 to 20 hours a day.  Due to this she gets homebound in the home for 2 hours a day. We go to Riley every month and sometimes 2 to 3 times a month.  She has alot of Dr's. and it seems that everytime we go down she gets more. Thank you for listening and for all the support for breonna. GOD BLESS ALL