Ethan S. - Quilt Finished in 2005

Born: August 18, 2004

Illness: Trach with vent dependance, feeding tube dependance, and multiple congenital defects

A Thank you from Ethan's Family!

Written September 12, 2005

Absolutely beautiful!  He loves it.

Thank you, Ethan's Family

Ethan S.'s Story

written by mom Jennifer

Ok, are you ready? :) Ethan has... impartial brain, sensorineural vision and hearing loss, arched palate, trach with vent dependance, Wolff-Parkinson-White Syndrome, ASD, PDA, fundoplication, VP shunt treating hydrocephalus, kyphoscoliosis, inguinal hernia, Mic-Key button feeding tube dependance, club feet, undiagnosed genetic condition and undiagnosed smooth, low muscle tone.  They think he may have a condition called Simpson Dysmorphia, or some type of muscle eating disorder such as SMA, or MS. Although he is one year old, he cannot sit up, walk, talk, or even hold his own head up. He is definately a blessing and a joy in our lives!

Written by Ethan's mom Jennifer on August 24, 2005