Hailee S. - Quilt Finished in 2005

Born: September 25, 1998

Illness: Epilipsy, Mitocondrial Disorder, Septo Optic Dysplasia, Autism, Neuroblastoma Tumor

A Thank you from Hailee's Family!

Written August 26, 2005

Thank you guys for hailee's quilt, it is lovely...

she loves to lay and watch tv with it.. sorry it has taken me so long to let you guys know that we got it....

Love Melissa, and Princess Hailee

Hailee S.'s Story

written by mom Melissa

Hailee Destiny was born 9-25-98, five days later she started having grand mal seizures, we spent 6 weeks at childrens trying to learn what was wrong with her, it was decided that she had a brain disorder from undeveloped brain cells that where causing her seizures.   Also, about a year later, she was diagnosed with a metablolic disorder called mitocondrial, it effects her energy she

is tired a lot, and gets sick alot.  When she was three she was diagnosed with septo optic dysplasia, which effects her eyes and her hormones, she is on total hormone replacement, she has to take shots every night to help her grow.  When she was 6 she was diagnosied with high functioning autism, ocd, and adhd, and than just recently, this last week, she was diagnosed with a neuroblastoma tumor and we are just getting ready to start treatment.

Written by Hailee's mom Melissa on July 30, 2005