Jace L. - Quilt Finished in 2008

Born: February 11, 2007

Illness: Wiskott Aldrich Syndrome

A Thank You From Jace's Family!

February 26, 2008

Dan just finally made it into work today and picked up the quilt. It is absolutely beautiful! We love it!  I cannot thank you enough for thinking of Jace and having him become a part of love quilts. We have clinic again tomorrow, but hopefully I can get a picture up on carepages and I will send you one with Jace and the quilt on Thursday.

Thank you again,

April and Jace

Jace L.'s Story

Written by Jace's mom in January 2008

When Jace was born in February of 2007 we thought he was the healthy, happy boy we dreamed of.  Being a first time mother, I wasn't too worried about anything when in his second week of life he developed what I and the his doctor considered a case of "baby acne".  The acne turned into terrible eczema, but even the dermatologist we saw never got me worried. 

Jace grew, learned to smile and laugh and was growing up as to be expected.  A little ear infection here, a little skin infection there, but again I was never really worried.  On a regular check-up I pointed out some brown spots developing on the skin and the doctor said we should take blood.  Around 8 p.m. that evening our world changed as we were told to rush our healthy, happy little boy, who was rolling around playing on the floor with his dad, to the hospital.  The brown spots were signs of low platelets and they were nervous that the platelets were continuing to drop.  They did not drop, but they never came back up.  After seeing a pediatric hematologist and sending off blood for a 6 week genetic test, Jace came back positive for a very rare blood disorder call Wiskott Aldrich syndrome.

Since his diagnoses around his 6 month birthday, we have been waiting for a donor match for the only known cure, a bone marrow transplant.  We found a suitable match in December of 2007, and began the process in January of 2008.  Jace had his transplant two weeks ago and we are currently still in the hospital, waiting and hoping for engraftment.