Maryah T. - Quilt Finished in 2007
Born: May 7, 1994
Illness: Ewing's Sarcoma
A Thank-You from Maryah's Family!
Written on July 12, 2007
The quilt is absolutely breathtaking and the feeling you get just opening it and seeing it is amazing. I showed all the ladies at work (I just had to) and they were all flocking to my office and staring at this beautiful work for the entire day yesterday. I folded it carefully back up and brouht it home yesterday with your note and the beautiful bag. Maryah opened it when we got home and she immediately teared up and wrapped up in it. Although at first I was a little skeptical about her dragging it about and curling up in it when I saw her do that I knew it was just what it was meant to be for. She covered up with it all night and then brought it to her bed, removed her other blankets and covered with it again. It is not just the beauty of the work and time that was put into this quilt it is the love and positive thoughts that came with it that is so touching and you can truly feel that when you hold onto it.
Thank you all! What an amazing gift!
Rachel and Maryah
Maryah T. Story
Written by Maryah's mom Rachel in August 2006
Maryah was born on May 7th, 1994 on a beautiful Spring day. She has spent her years since birth lighting up the lives of her family, friends and all those she comes in contact with. She has a very caring, nurturing and strong spirit. Her faith has always been strong and she is never ashamed to show that side of her character. Maryah has spent the years dancing in competition dance, spending time with friends, swimming and being a very healthy and active child.
In January 2004 she was diagnosed with Ewing's Sarcoma after experiencing significant pain in her right thigh. After 14 rounds of chemo and surgery to replace her right distal femur and knee. After nine months we found a lump in Maryah's forehead which turned out to be a recurrence of Ewing's in her skelatal bone. The tumor was removed along with a piece of Maryah's skull. She then underwent 25 rounds of radiation and 10 more rounds of chemo therapy. Along with that there were multiple long-term hospital stays due to infection and pain management.
Today Maryah has finished her chemo therapy and has had no evidence of disease since her initial scans in April. She is battling a severe infection in her prosthetic that may inevitably lead to the amputation of the leg she has worked so hard to save. Only time will tell but her spirit speaks loud and clear of hope, faith and persistence to beat this disease.
