^^Angel^^ Sarah C. - Quilt Finished in 2007
Born: July 22, 1997 - Passed May 21, 2009
Illness: Acute Myelogenous Leukemia, CNS Chloroma
Sarah's Story
written by mom Michelle
Sarah Elizabeth was born on Tuesday, July 22, 1997. She was delivered via c-section because of complications I had during child birth.
She was always a happy baby. She slept most every night. She never had the day and night thing mixed up. We all fell in love with our “Sassy Girl”. She was the light of my life. I chose her name from biblical names of strength and beauty. Sarah meaning “princess of the multitude” and Elizabeth meaning “the oath, or fullness, of God.” Neither of these names had ever been used in our family. I began telling people that her name was given to me from the Bible. I would tell them how Sara was Abraham’s wife and how Elisabeth was John the Baptist’s mom. They all thought I was a bit odd in doing this. They told me her name was a classic. It soon became a familiar name to be heard everywhere.
Sarah had a happy childhood it was just as normal as anyone else’s. She started preschool at 3 and soon made lots of friends. It was to our amazement that she was such a quick learner. She loved books. She would sit and look at them for hours. She liked going outside and exploring nature. She soon developed an interest in rolly pollys and frogs. I tell you it was a true test for me to keep them out of her diaper or pockets.
She completed her 2 years of preschool and soon went into a private Christian school and met her new school family. She still has so many close friends at her school and she misses them dearly.
Let me back up a step and talk about when she got sick.... Sarah started having headaches around the beginning of May 2006. She would call me each day around lunch time saying her head hurt. I would let them give her Tylenol and she was fine. She never really complained much at all. This headache thing began to get worse. It was a daily thing. On Monday, May 16, 2006, Sarah called me and I went to get her from school. She said she felt really bad. She complained of her head hurting and her mouth. I immediately thought about her having a cavity. We went to the dentist. He confirmed she had a cavity and had too many teeth in her mouth. They said to treat it with Advil and the pain should go away. I felt good at this point.
Ok, so we would pull some teeth in a week or so and things would be good again. To my disbelief I would be awakened at 5 am with Sarah in tears asking to go to the ER. I asked her if she felt she could wait to go see Dr. Bradford at Laurel Pediatric Clinic. She said ok. She relaxed as much as she could and we waited until our appointment at 9 AM. We were immediately seen. They ran a CBC. I had no clue why. We were sent to the hospital for a chest X-Ray and were told to go back to his office. We arrived and they did another CBC suggesting their machine was acting up.
The doctor soon came in and asked Sarah to go out of the room with his nurse. I didn’t know what to think. He began telling me about how his test showed Sarah’s white blood count was 98,000. This was way too high in his mind. He told me he called a doctor in Jackson at Blair E Batson Children’s hospital and would be referring Sarah to them there. I was in shock and soon called my family to hear this terrible news. It was like taking a dose of very bad medicine. We arrived in Jackson around 5 pm May 18. We met the kind doctors and nurses of BEB and soon Sarah had more blood tests. This time her white blood count was 118,000. This was a big difference considering the few hour difference. She was admitted.
Little did we know about her diagnosis! We were told she had Acute Myelogenous Leukemia. They said they could treat here there and that we should start immediately. By May 21, Sarah had started her rough 6-7 months of ARA-C, VP-16 and Daunorubicin. She has had numerous bone marrow aspirations and lumbar punctures. She is a pin cushion. We was in the hospital each month at least some time during the month. We were told on October 21, 2006 that Sarah was in remission and that chemo could be stopped. We would come in the next couple of months once a month to get her counts checked.
Sarah did great during November. Not a problem one did she face. She went back to school and was a normal 9 year old. To our disbelief and non understanding, Sarah’s headaches began again. We called Jackson and they said to watch her. Soon after Thanksgiving, Sarah’s left side became a bit different. Her hand was cold. She did not complain at all. Her headaches were getting a bit stronger. My husband and I went shopping on December to get early Christmas presents and shopping done. We got a call from my mother in law. She said Sarah had a really bad headache and she gave her some medicine. When I arrived home, Sarah could not walk and when she was able to get up she stumbled around. I soon called Jackson. They said she needed a CT scan.
We went to the local hospital and they found some sort of lesions. They did not know what they found. We were sent to the hospital in Jackson. They too did a CT scan and found the lesions too. We let them do a 5 day strong round of chemo before we did anything else. After this they did another CT scan and nothing had changed. They then planned on a procedure called an Intervention. This Intervention was a sort of brain surgery to see what these lesions were. They had it narrowed down to 2 things. It would either be a bad fungal infection that AML kids can get or a tumor. We had hoped for the fungal infection. We prayed so hard. We were told around 7 that night that it was a Chloroma. This was a sort of tumor that was caused by the AML. Ok... There it was, a tumor this time.
She spent one night in PICU. She soon began radiation and chemo at the same time. Once the tumor seemed to be going down they could do a LP and put meds in her spine. We were told at that point that she had fully relapsed. Her bone marrow was back to 85% blasts and her blood was at 60%. I believe at that point my world stopped. Sarah spent the entire month of December and January 07, in the hospital. She has had numerous LP’s and at least 3 different rounds of chemo to get back into remission.
We were told they were once again successful. Sarah is in remission again. They said her only hope of making it was to have a bone marrow transplant. We are lucky. We have 2 other children. Andrew Thomas and Emma Danielle were checked. Andrew Thomas is a good match.
February 26th, 2007, we started these next phases to get the children ready for the transplant. Andrew is our Super Man. His special medicine in his body will save his sister’s life. I am so blessed.
Update:
March 2008
Sarah had her transplant but is now back on chemo fighting once again.
Update:
Saturday, May 23, 2009 (personal details omitted)
Sarah Elizabeth (C.), 11, died Thursday, May 21, 2009 at the University Medical Center. Sarah was born July 22, 1997. She was always a very happy child! She loved learning new things and especially loved all of God's creation. She loved God and learning about his word. She had faith that he would heal her and never lost that determination. She fought for three years a battle that most adults could not face. She faced this horrible disease each day with as much faith, love and comfort for those around that amazed each person who knew her. She always had a smile or a laugh no matter how bad she felt. She was a student at (L.) Christian School. She had a loyalty to her school and her friends that kept her going. She loved school and most of all learning new things. She always wanted to be at school no matter how bad she felt. Sarah's will was so much stronger than most. She graduated 6th grade on May 19, 2009. Her beauty and sweet innocence will be missed by her family and friends. Her memory will go on.
